Monday, October 17, 2011

Welcome

Okay here we go...

So I have decided to share our family story with everyone.  My daughter, Ella Marie Coleman, was born on January 27, 2010. 

<Ella Marie Coleman - Day 1>

The most amazing days of my life.  A week and a half later, we got a call from our pediatrician.  Our newborn screening had abnormal results.  Very Scary...  That is all I can say.  She was diagnosed with Glutaric Acidemia Type-1 or Glutaric Aciduria Type-1.  In a nut shell, her body does not break down protein properly.  Looking at her, you would not be able to tell she has a special need.  We have to monitor her diet and give her medicine daily.  This is something we have lived with for the past 20 1/2 months and will continue for the rest of her life.


<Ella - 20 months old>

We live an Ordinary Life with an Un-ordinary condition. 

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