Wednesday, October 26, 2011

On the Home Front....

On Friday Ella has to have a MRI....  I'm a little nervous... Okay a lot nervous...

First off they have to sedate her.  I understand why, I just don't like the idea.  Second, dealing with the insurance company is a b***h....

While Mom is a mess about this MRI thing....


Ella has no clue what is coming. :)

On a happier note... If things go well, which I'm sure they will...  We will another fun family weekend with GiGi and JaJa...

Monday, October 17, 2011

Our Weekend....

It was the 84th Austin County Fair this past weekend.  Good bye Corpus Christi, Hello Bellville....

Fortunately GiGi and Granny picked up Ella early.  They took her to the Parade and Fair on Thursday. 

 LOVED the Goats.....


Granny LOVED watching Ella with the Goats....

On Friday we drove up....
And on Saturday, it was on... Full Fleg Fair Time....

More Goats....LOL 

And of Course the Horses.....

I have a little animal LOVER....

Time for the Rides....
Take note of the ice cold beverages in our hands... Typical fair....

Here we go... She is watching like CRAZY...

 The Slide....

And the Hobby Horses with Holden and Daddy....

I have a little Dare Devil on my hands....

This Thing....

Gigi asks Ella "Do you want to go ride the Hobby Horses again?"
Ella says "NO, nump" (Ella's word for jump) and point to this Thing....


A HUGE smile on her face the whole time...

And so before the night is over, we trek down to see Hunter and Hayden's piggies....

And that folks was Austin County Fair 2011...  Until next year....

Welcome

Okay here we go...

So I have decided to share our family story with everyone.  My daughter, Ella Marie Coleman, was born on January 27, 2010. 

<Ella Marie Coleman - Day 1>

The most amazing days of my life.  A week and a half later, we got a call from our pediatrician.  Our newborn screening had abnormal results.  Very Scary...  That is all I can say.  She was diagnosed with Glutaric Acidemia Type-1 or Glutaric Aciduria Type-1.  In a nut shell, her body does not break down protein properly.  Looking at her, you would not be able to tell she has a special need.  We have to monitor her diet and give her medicine daily.  This is something we have lived with for the past 20 1/2 months and will continue for the rest of her life.


<Ella - 20 months old>

We live an Ordinary Life with an Un-ordinary condition.